"What progress, you ask, have I made? I have begun to be a friend to myself." Hecato
"I finally think I understand it now," my mom said.
She had just arrived for her daily hospital visit. I was tired and restless. I have been in this bed for at least the last four weeks, and I was craving sunshine. Every day she would arrive, I would ask her what it's like outside. Is it sunny? Does the weather feel nice? What's it like?
I could watch the weather on the news, of course. But it wasn't the same as feeling the cool air kiss my skin, and looking up to the sky and squinting as the sun reflected in my eyes. The last time I've been outside was the brief moment I was rolled on the stretcher from my hospital room to the waiting ambulance and transported to a new hospital across town better suited to treating patients with eating disorders.
The window from my room had an obstructed view. I could tell if it was light or dark, but not much else.
As my depression worsened and rapidly manifested itself as an eating disorder and a severe fear of food and properly nourishing my body, I was desperately searching for the words to explain to my family what was happening to me.
"I don't feel good," I said. "I'm not happy," "It hurts," "It's not my fault."
"Just eat," they pleaded.
My sister reminds me now the saddest thing I told her while I was deep in my struggle, searching for a way to explain to them what I was going through.
"It's always been like this," I told her. "Just now how I felt on the inside is starting to show on the outside."
My sister cried at the thought, finding it morbid. But to this day, I still think it's the truest explanation.
I remember the first day I felt I physically could not eat my lunch. It was not like me to skip a meal. Actually, in university, it was my favorite part of the day, because it allowed me a break from school and work, and just an hour of downtime to sit with my friends, or in front of the TV and enjoy a meal, without the pressure of thinking about anything else.
I didn't feel hungry, but I knew I had to eat, as I had to head off to work in less than a half an hour. I was happy that the cafeteria was serving sweet potatoes that day, one of my favorite foods. I pulled my chair closer to the table, and looked down at the plate in front of me, and I cried.
I was stressed out and had a lot on my theoretical plate, and my mind.
I don't know how much of my reliance on food restriction was a conscious choice, or how much was just instinct, a feeling that I had control over some aspect of my life. But, at the time, it felt good that I didn't feel hungry. I felt superior over the demons I was fighting. I felt like I could have everything: classes I loved at school, work I was proud of and co-workers I was happy to work alongside, but I didn't need this. Maybe other people did, but I was sure I didn't.
"The part of your brain that is refusing to allow you to eat," my mom said, "that's not you, that's not my Brianna- that's the bad Brianna."
This was something my mom pondered about before. I've been through a lot in the past four weeks of the hospital. I showed little progress and hadn't been able to gain any of the weight I lost back, but every now and again I would show signs of hope that I would get better. That was the hope my mom held on to- that maybe, just maybe, I would come out of this alive, with minimal long-term damage to my organs.
The first day my mom arrived at the hospital, I didn't know she was coming. I had been admitted the night before, because my heart rate was dangerously low- in the 40's. I was almost immediately checked into the Intensive Care Unit to be monitored over night, because the situation would be dire if my HR were to drop any lower.
Nurses wrapped me in blankets hoping to preserve my body heat and avoid any further drop in HR. Before I fell asleep, the nurse asked me that in the event of an emergency, would I want the doctors to do everything they could to revive me and save my life.
I told her no, and signed my name on a "DNR."
I was 21 years old, labeled a 'fall risk', having my heart rate closely monitored, and told the nurses that if anything were to happen overnight, to let me die peacefully. This is what I wanted, I was sure. I signed my name on the line.
When I woke up in the morning, I was told my mom was on her way, a four hour drive from where she lived to the hospital.
The nurses said they didn't believe I was making decisions that were in my best interest, so my mom was now in charge of making all medical decisions for me, and she should be here within the hour.
When my mom arrived at the hospital, she rushed to the side of my bed. I could see the worry in her eyes, but if I were to have seen mine, I don't think there would have been much reflected in them. They were empty, just like I was.
She hugged me and kissed my forehead.
"Why are you here?" I said. "You shouldn't have come."
I was angry that the right to make decisions for myself were taken away, and I was taking it out on my mom, who only wanted to help me, who only wanted me to stay alive.
I had sent back several of my meals already at the hospital, and my nurses and doctors were quickly becoming fed up with me. I had already been diagnosed with delayed gastric emptying, so even a little quantity of food would make me feel so full that I felt physically ill. I felt like I couldn't take in any food, even if I had wanted to.
The doctors threatened a feeding tube.
As visiting hours came to an end, my mom was getting ready to leave, and I grabbed her hand.
"Mom, do you have to leave?" I pleaded with her.
Even though I initially questioned why she was there, she knew that wasn't coming from me. She knew it was the disorder lashing out at her, because she was trying to save my life, and the disease was doing everything in its power to attempt to take over my mind, and break down my body.
Knowing that I would probably get a feeding tube placed that night, I was scared. I didn't want to be alone. My concentration was poor, and I wasn't able to hold a full conversation, because I was tired all of the time, I wanted my mom's company and the safety she provided me that somehow, everything would turn out OK.
"It's like there's two Brianna's," my mom said, "There's the good Brianna, that's my sweet girl, that she cares for people and loves school and work and wants to live and beat this, and there's the bitch Brianna, the disorder that's trying to take your life."
I was so relieved when my mom made this connection, that she showed signs of understanding what was taking place in my mind, why it wasn't as simple as "just eat" or "do something that makes you happy." What was going on in my mind was bigger than me, and I needed some help. After searching so desperately for months for the right words to explain what I was going through, what I was dealing with, and ending with both of us getting frustrated and upset, my mom was finally getting it. We were on the same page and would work to beat this together, whatever it took.
When my mom had that change in mindset, I had one, too. I was willing to accept medication to get well, accepting that what I had been fighting for the majority of my life was bigger than me; it was bigger than natural remedies, it was bigger than going out in the sunlight, getting exercise and eating right, it was greater than anything I had tried to heal myself. It was beating me, and I wouldn't stand idly by and accept it. Now that my mom and I seemed to be on the same page, I didn't feel alone anymore. We both knew what we were up against.
I had always been reluctant about taking medication, because of the possible side effects. But at the point I was at, I figured, it couldn't possibly be any worse. I spent a lot of my day sleeping, laying in bed with my knees tucked into my chest and crying. I couldn't sit up and hold a conversation without losing focus, needing a nap, or wanting to cry. The hardest thing for me was losing my faith. Being a strong believer in Buddhism, I couldn't read the Buddhist texts I once loved, I questioned everything.
After about three days of regularly taking an antidepressant, I felt well enough to sit up in my bed and have a heart-to-heart conversation with my mom for the first time in probably three months. I was so happy. We went for a walk up and down the hallway in the hospital. Being on the same page, she understood how hard it was for me to get through a meal, and how when the nurse delivered my meal tray, I would black out, riddled with anxiety. She would try to distract me with conversation, but I just couldn't seem to get past how afraid I was by the amount of food that appeared on each tray. My mom remained patient, and she sat with me during each meal, ensuring me that she was there when things got difficult, and we talked through it. We took it day by day, meal by meal, and I couldn't have gotten through the rough patches without having her on my team.
From that moment when my mom proved to me she was starting to understand what I was going through, we encountered many challenges in my road to recovery, but I didn't feel as frustrated by setbacks, because I felt confident in knowing that I had a team of people on my side who were rooting for me and my recovery. I knew I had people counting on me to pull through. There were times when my mom would become frustrated by my lack of progress or if I experienced a setback. I had told her that for us, recovery would look a little like swimming as one vessel; if she could kick, I would try to move my arms as fast as I could. We were both tiring out, but ultimately, we were moving forward, and that's better than nothing in my eyes.
